Coproduced by WSPCF and Reaching Families

Health

The information on Coronavirus on these web pages has been written and compiled by West Sussex Parent Carer Forum and Reaching Families using trusted local and national resources. Given the picture is changing daily we cannot take responsibility for the information or any actions taken as a result. We will be adding more information as and when we receive it so please keep visiting these pages to stay up-to-date.

Keeping Well

It’s been proven that proper hand washing is our number one defence against the Coronavirus. But how many of us are really doing it properly? We found this really helpful guide on the internet, so wanted to share it with you (slightly amended to reflect English, rather than American, vocabulary).

6 Steps to Wash Your Hands the Right Way:

  • Step 1: Wet hands with clean, running water (warm or cold), turn off tap and apply soap
  • Step 2: Lather hands by rubbing them together with soap. Lather the BACKS of your hands, BETWEEN your fingers, and UNDER your nails.
  • Step 3: Scrub hands for at least 20 seconds (I recommend 30 seconds or 1 round of the ABC song).
  • Step 4: Rinse your hands well under clean, running water.
  • Step 5: Dry your hands using a clean towel or air dry them.
  • Step 6: Turn off tap with your elbows, wrists, or paper towel, not your freshly-cleaned hands!

If you want to make hand washing a bit more fun, watch this video from Purple All Stars for some inspiration!

Coronavirus and SEND

Although it isn’t possible for us to cover every type of disability of special need, we thought it would be helpful to provide some links to some specialist sites who might be able to help and support you during these unprecedented times.

Autism

Carol Gray’s social story is a helpful resource for helping your child or young person with autism to understand the current situation.

Mencap have also produced a helpful easy read document.

Cerebral Palsy & Physical Disabilities

The government’s guide on social distancing is a good starting point for people who are most at risk from the coronavirus.

Down Syndrome

The Down’s Syndrome Association have produced an easy-read document about Coronavirus, which you can download here.

Learning Disabilities

The government has provided guidance for adults with a learning disability about social distancing. This could be useful for parents who have a child/young person aged 16+. It can be accessed here.

PMLD

If your child has a profound and multiple learning disability, you may find WellChild, the UK Children’s charity for seriously ill children, a useful starting point.

CCG Community Connectors Support Offer

You can contact the West Sussex Clinical Commissioning Group (CCG) Community Connector Team if you’re struggling to access health services or need information from the NHS on any changes that are happening in services (for example, concerns over access to medicines, how to volunteer locally, how to contact your GP, where to find a dentist or management of long term health conditions). They will connect you with the right team in the NHS or signpost you to the right support within the CCG, Public Health and wider NHS, and in many alternative formats such as Easy Read or languages other than English, should you need it. Contact details:

  • West Sussex queries: Lilly Kennard (lilly.kennard@nhs.net), Public Involvement Manager for West Sussex CCG
  • Sussex-wide queries: Public Involvement Team for Sussex CCGs (sxccg.involvement@nhs.net)
  • Telephone: 01903 708400
  • Postal address: NHS West Sussex Clinical Commissioning Group, Wicker House, High Street, Worthing BN11 1DJ

Mental Health Support

People across Sussex struggling with their mental health during the coronavirus (COVID-19) outbreak are being offered additional telephone and crisis support to help them cope.

Sussex Partnership NHS Foundation Trust has expanded the West Sussex Mental Healthline – 0300 5000 101 – to provide a 24/7 service to people needing urgent help with their mental health.

As well as crisis support it will provide psychological support to people who have general concerns about their mental health.

Registered clinicians are at the other end of the freephone number to provide help, support and advice to anyone who needs it, at any time of the day or night, regardless of their age or where they live in the county.

The team at the West Sussex Mental Healthline can offer advice and support to callers who are experiencing a crisis in their mental health, and if needed they can refer them to one of five newly created urgent help hubs for assessment and treatment.

General advice about how to manage your mental health during the coronavirus outbreak is available online at as well as through @withoutstigma on Twitter and on Facebook.

Medical Alert Cards

Individuals can either print the card out after filling out the tab forms on the computer or laptop or it can be printed out and filled out by hand.

A picture of it can be taken and stored on the autistic person’s phone.  Think about safety as the card contains personal data.  It is particularly useful if taking Covid19 extra exercise or to just lessen anxiety by knowing you have it. It also lessens parents/carers/dependents’ anxieties.

To access a template of these cards and helpful tips please click on the link below.